Monday, July 15, 2013

Calvin's First Surgery

He finally had tubes put in today. It took switching back to our original ENT after a fiasco last week when it was supposed to be done but we got it done! Just hours after the procedure he is acting like a new baby.


     
              Doesn't he look so excited to be here?                                 His hospital jammies.






This fiasco we went through last week left us at a cross roads with our current set of care providers. I understand being safe and I want to be safe with my baby but our current doctors have been too safe. Almost barely acknowledging Calvin has a chronic problem. Last week when we were denied clearance for surgery last week the reason given was "he sounds wheezy". Well ok, we were left to wait for a hour in the waiting room in which Calvin bounced off the walls and it was all I could do to keep him from tearing down their office. He's been extremely hyper I bet he is wheezy! That is why he was diagnosed with RAD and has Albuterol for. Then I heard the same thing I've been hearing for months.."give things another week and he might dry up with warmer weather".

??????????????????????????????????????????????????????

It's July, we are half way through the summer and it s 105 degrees and he's NOT DRYING UP! I never went to medical school but I do grasp the concept of a chronic condition and chronic isn't just sometimes or only on Tuesdays that the blue birds come out and chirp. RAD is baby asthma and it's not going away overnight. A lot of infants do outgrow RAD and doesn't guarantee an asthma diagnosis later in life but it's not outgrown in a week. It's like they are treating this a just an ongoing cold and not what it actually is.

This surgery by the way does not require intubation, only gas and no IV's and lasts about ten minutes. None of that was taken into account for; he will only get sick again and sicker as he did two weeks prior with the crud and congestion and fluid sitting inside of him. The tubes will keep all that drained.


I was mad! Really mad to say the least! When I got to work last Monday I called ENT Care for Kids which was the first people we saw. I wish I hadn't left and had done the surgery two months ago instead of listening to too many opinions. Calvin wouldn't be going through this now. It was the right thing all along. Luckily, just luckily the Dr was willing to take us back and squeeze us in that day. I walked in with my head hung in shame and told our story of the last two months. He did his own evaluation and exam and didn't think the wheeze was serious enough to not proceed. After I did some checking with insurance with the hospital he could do it at we scheduled surgery two days later. I also began to re-think my pediatrician choice and after taking the week to think decided it was time to cut ties. We will be moving to the practice I was going to take him to when he was born. I've heard nothing but good about them from numerous sources.



The big day...7/15/13. We headed out the door around 5:30am for the hospital; the Texas Health Resources Center for Diagnostics and Surgery and everything about check in and registration went smoothly. The nurses were excellent and they even brought out a wagon for him to around around the unit to to occupy him until it got closer to being taken back. He was elated about riding around in the wagon! This got him worked up into a wheeze which made me nervous since we had gotten this far. The anesthesiologist came in to exam him and she started asking who his pulmonlogist was and why hadn't he been referred to one after his RAD diagnosis?? I told him I had the same questions but we were in the process of moving pediatricians. She suggested going ahead and looking someone up and booking my own appointment because she definitely agreed he has RAD. She ordered a neb treatment for him to see if it would calm things down along with getting him to sit still with some cartoons. It worked! She barely cleared him but stilled cleared. They carried him back for the procedure and the waiting began. Give or take ten minutes later Dr. Badi came in the holding room and went over what they did. They sucked a ton of goop out of his little head, all the junk that has been making him sick over and over. He has some anti-biotic ear drops to take for the next five days to kill whatever tiny bits of goop they couldn't reach in nooks and crannies. By the time we got done chatting Calvin was ready in recovery and off around the corner I went where he was wrapped in a blanket and being held by a nurse who was showing him his heart monitor. He was very calm and happy but drowsy and definitely ready for something to drink. Will had just gotten off work and had finally made it just in time for the anesthesiologist to come out and go over he part. He had done great with the anesthesia and came out pretty good and reminded me again about seeing the pulmonary doctor and also mentioned seeing a digestive specialist for his GERD since that had not been thoroughly explored either and she gave me a personal referral to the best in town! I loved this doctor!! She also told me if I had to see our normal pediatrician while we are transitioning and they wanted to doubt his RAD to call her personally and she would set them strait!



    
           Wagon ride around the hallways!                                                 Calming down with cartoons.






We were going home about thirty minutes later!





He recovered quickly!



We will have a post-op follow up in a few weeks and several appointments with specialists over the next few weeks too. Updates will follow.





XOXO...and a little bit of drool








Sunday, July 7, 2013

10 Rules for Dating My Teenage Son

Ok, so he's only 9 months old and we've got a ways to go till we cross this bridge. Today this article....if it can be called that...popped up in my news feed on Facebook.

http://thestir.cafemom.com/teen/157945/10_rules_for_dating_my?utm_medium=sm&utm_source=facebook&utm_content=natural_fanpage

10 Rules for Dating my Daughter. I have seen so many mommy blogs with similar titles and similar requirements over the last year and half. They start off with a similar paragraph; "my little princess is only two but I dread they day she is no longer a baby and brings home the first boy", or something like that. HA! Much like this post just started. Well here is my rebuttal and two cents...

1. No means NO!! Calvin has been taught since now, his infant hood that some things are "no-no's" and there are places his little hands don't go. Right now it's the cleaning products under the sink and mommy's photo frames on the end table. One day when the time is right he will be taught about girly parts and alcohol and other dangerous fun that isn't so fun when things go wrong. When he tells you NO, don't nag him, don't whine and cry, He has our permission to leave you on the side of the road or a parking lot to get himself out of a potentially bad situation that you are trying to drag him into.


2. An open door means an OPEN door! Literally and metaphorically. It means no barely cracked doors while you crawl under a blanket with him so the creek of the door gives you enough time to jump out of the blanket. It means wide open like the Sierra Desert plains which takes away your five second lead way. It also means we are open parents who are not afraid of anything Calvin needs to say or needs guidance on. His parents combined have years of bad choices to pull from and we know where things can lead and how they turn out. We don't want this for our son.   Your teenage sweet nothings are not a secret, and any influence you try to have over him to steer him from what we have taught him will be noticed and dealt with.



3. Condoms are not optional...IF there is any sex at all! Calvin is not your meal ticket! We will teach him first and foremost about waiting until marriage. God's design for marriage. What real love and a stable relationship looks like. We will teach him about life goals and education so he can one day provide for a family. However, if when he is old enough to leave the house on his own and he decides sex can't wait he will have been thoroughly taught what pregnancy costs, what preparing for a baby costs, what labor and delivery costs, what daycare costs, what time lost from work because the baby is sick costs. What diapers and wipes and breast pumps and formula costs. Oh yea, and what child birth looks like; like National Geographic wide open vag stretched ten ways from Sunday or the bloody mess an emergency c-section looks like. Then his dad will teach him how to properly and correctly roll a condom on and make sure there is always "emergency" cash in his wallet for a Trojan 3 pack. I'm confident that Walmart and CVS will still be open 24 hours a day eighteen years from now.


4. There is a such a thing as too much PDA. I know when there is new love in the air all you want to do is touch each other. That touching should be limited to holding hands, a hug and a kiss on the cheek. If caught sucking face, Calvin will be in trouble and I'm telling your parents!


5. Keep your fingers out of his belt loops. I'm talking about the girls who walk around the mall with their fingers intertwined in the boy's belt loops as if the boys are puppy dogs they need to keep on leashes. Calvin is not your property.  He is my Baby Bear, my little Monster NOT your puppy dog! Until the day he is completely out of our house and wallets and living on his own he will continue to be my Baby Bear. Don't let Mama Bear catch you doing this!


6. Don't obsessively call and text. Ya'll aren't grown up, you aren't his wife and you don't own him! We pay for that phone that you are blowing up and I WILL take it away and answer it. I will change the number if I have to and I will save all the evidence and send it to your parents. Don't underestimate my investigation abilities. Take a line from Miranda Lambert and "Hide your crazy and start acting like a lady". On the flip side of the coin I will find out if Calvin is leading you on and I will nip that in the bud just as fast! His wrath will not be fun or pretty.


7. Don't break curfew. This is pretty straight forward. It's each of your having respect for the parents involved.  Going out and having fun is a privilege that can be taken away.


8. Don't lie. Don't stretch the truth. Don't be a drama queen.  I will catch you. I might be an old mom, but I'm exactly that. Older, wiser, been there done that and your type is not a new concept. Don't lie to Calvin, don't lie to us, don't like to your parents. If you just tell the truth you won't have to have a good memory later.


9. He's smart. Get over it. The second day we were home from the hospital we popped in a Baby Einstein DVD in hopes of boosting his brain cell growth. I guess it worked because he crawled at 5 1/2 months and was walking with assistance at 9 months. There are too many other numerous milestones he hit early to list. We've worked hard his whole life to help him reach is full potential. We are not going to stand by and let you convince him he is sub-par in any way.

10. He's comfortable in his skin. Let's keep it that way. If you aren't attracted to all of my son, and you want to pick apart his biceps, hair style or his clothes or his life goals or anything in between......hit the road Jezebel and don't you dare come back! He doesn't need you tearing down his self esteem.



Got it? Good. You won't be met at the door by a mama with a shot gun pointed at your face. Maybe...






XOXO...and a little bit of drool













Monday, July 1, 2013

Poor sick baby. Our first visit to Downtown Children's.

Calvin was scheduled for surgery on Tuesday to have tubes in his ears. That all changed last Monday, or maybe technically last Sunday. Out of the blue he just started spiking a fever and became un-playful. He had started a horrid sounding cough Saturday but he has has that on and off for months. As the night went on Sunday he started breathing fast and sounded like he was working hard to breath. I didn't like what I was hearing but we had an appointment with his ENT in less than twelve hours for pre-op clearance. Something told me there would be no surgery this week. I didn't sleep much that night, I kept waking up to check his breathing.

Monday morning came and he was still running fever. We went to his appointment and his ENT doctor,  Dr. Carder took a peek in his ears and said sure enough he had a current infection which makes five in five months. Yep, no surgery. He went on to listen to his lungs and told me that they "sounded like a train wreck" and I needed to take him somewhere now for more assessment. He guessed he would have a chest x-ray and breathing treatments. We re-scheduled for July 9th and I walked out to the car to call our pediatrician. They didn't have any openings until 4pm. I left a message for the nurse to see if we could be squeezed in any sooner. I drove to a nearby McDonald's for breakfast and to slow down my racing mind. I went through drive through and sat in the backseat with Calvin. He looked worse than he did fifteen minutes ago in the doctor's office. I was able to reach Will and I told him what I was told. After discussing the hospital options I had around me we decided Downtown Children's was the best place to be in the worst case scenario. Off I went with a whimpering baby in the backseat.

Children's is even larger than it looks from the freeway, also note that it's attached to Parkland. I work at a very large hospital and used to navigating multiple buildings and such and even I felt overwhelmed. The folks that get lost and complain about our hospital layout would end up on milk cartons in this place. Children's/Parkland resembles a mini city.

For all the stories I've heard about how busy and packed Children's ER stays I was really surprised at how fast triage happened and how fast treatment started. They sent him to fast track which I was upset about because I felt he had real problems going on. I've worked around healthcare long enough to know that fast track = BS. I didn't think being told by a doctor to seek medical attention NOW because he sounds like a train wreck is BS! Surprisingly though the NP treating him did take everything serious and there was no dilly dally and she was aggressive where it needed to be. We still spent all day there but it was a productive all day event. Not just spending four hours in the waiting room waiting to get seen type of ER visit.

He was given Motrin, suctioned, a nose swab and then an anti-biotic shot (1 of 3 part series) since he had been on other oral medicines with the previous four infections.The shot was awful; the dose was split into two syringes so so much medicine wasn't injected into the same muscle. Mainly comfort measure. It was obviously painful because he cried for twenty minutes and I cried for five. After he calmed down they took for chest x-ray which came out clear. Last step was breathing treatment which was a going home medicine. He was diagnosed with the ear infection, rhino virus and reactive airway disease since he as built up a history of these symptoms.

Ready to go home!!


You can read about RAD here....

http://www.mayoclinic.com/health/reactive-airway-disease/AN01420

Calvin's Albuterol for wheezing and coughing. Treated much like asthma



He got his other two shots in the pediatricians office on Tuesday and Wednesday. His fever broke finally on Wednesday and life resumed on Thursday. WHEW! It was a long tiring week but he has made a decent recovery.

          
He got a "stick" for letting Dr. Crow check his ears       Day 3 and final shot. This is what he thought of 3 shots in 3 days!





xoxo and a little bit of drool